What Is International Rare Disease Day

On February 28 the annual international Rare Disease Day is a globally coordinated event to further improve equality in social opportunities, healthcare and accessibility to diagnosis and therapies for individuals living with rare diseases.

Rare Disease Day has played a critical part in building a international community since it was formed in 2008. At the beginning there were only 18 countries participating with events. However, the Rare Disease Day campaign has since 2019 it has been held in more than 100 countries.

Rare diseases affects fewer than 2000 people within the United Kingdom, this amounts to over 3.5 MILLION people within the general population being affected at some point during their lives. Whilst this figure dramatically increases to over 300 MILLION on a global scale.

Challenges that are associated with rare diseases is the lack of scientific knowledge, quality of information which often leads to misdiagnosis. However, progress continues to be made with the United Nation's Sustainable Development Goal to support equitable health care that meets the needs of individuals affected by rare diseases to ensure no one is left behind

Our mission

At Seating Matters we support this ENORMOUS day as our mission is aligned to improve millions of lives a year, supporting those with rare diseases, such as

• Guillain-Barré Syndrome
• Miller Fisher Syndrome
• Huntington Disease
• Superficial Siderosis
  
  

Our chairs
Here at Seating Matters' we are passionate about improving patients lives through innovation, this is shown with our therapeutic seating range which are specifically manufactured to improve and enhance the quality of life of patients through clinical excellence. We emphasise this through our organisation's mantra 'JUST ASK THE PATIENT'

YOU can help in the effort to spread awareness of International Rare Disease Day by sharing this blog on the social media links provided below, or by sharing our website.

We hope that you will join us in promoting awareness of this special day